Thursday, July 25, 2013

who I am

hello everyone my name is Tara, and I'm in college studying communications. today is my first blog ever. and I'm not sure how these things work. I decided to start writing because I want my voice to be heard. I have a rare syndrome that i feel,  i should talk openly about. Now I am not writing a blog because I want people's pity I am simply writing because I want people to understand me better as a person and to remind people that I might be different but I am still human with feelings and can do what others can do.I want to educate people about the syndrome. I was born with wildervanck syndrome, its very rare and mostly affects woman. it is something that you have to be born with and can not be developed over time, so don't you have to worry about that happening in your near future. but anyways Wildervanck is usually recognized as a gentic disorder that affects the muscles and bone structure. in my case it affects mainly the right side of my face my eye, ears, nose, eyebrow, jaw, mouth, neck, spine, and hands.  in my next blog i will elaborate more about me. thank you for your time